Gene Therapy and Fertility Preservation Give Sisters Hope for Future

When Laura and Christopher Jones traveled to an orphanage in China, they didn’t expect to come back with two children. When they met Zinnia and Lainee, however, they knew that even though they were not sisters, their bond was just … Read More

Devin Defies the Odds While Waiting for an Organ Transplant

Shortly after Devin was born at 26 weeks, he was diagnosed with necrotizing enterocolitis [NEC], a serious disease that indicated bacteria had invaded his intestine and destroyed his small bowel. At two years old, he was put on the wait … Read More

Chewbacca Tells Patient He’s Getting A New Heart

Months ago when Austin Eggleston, 15, was listed for a heart transplant, Dr. Philip Thrush, Cardiologist at Lurie Children’s, promised he would deliver the news a heart was available dressed as Chewbacca. Born with three congenital heart defects, Austin had … Read More

Family with Medically Complex Child Launches Foundation to Fill Insurance Gap

When Kristin and Brenden Etue welcomed their daughter Livi into the world in March 2017, their lives were changed forever. Born with a genetic condition that affects multiple parts of the body known as CHARGE syndrome, Livi required extensive medical … Read More

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