Chewbacca Tells Patient He’s Getting A New Heart

Months ago when Austin Eggleston, 15, was listed for a heart transplant, Dr. Philip Thrush, Cardiologist at Lurie Children’s, promised he would deliver the news a heart was available dressed as Chewbacca. Born with three congenital heart defects, Austin had … Read More

Family with Medically Complex Child Launches Foundation to Fill Insurance Gap

When Kristin and Brenden Etue welcomed their daughter Livi into the world in March 2017, their lives were changed forever. Born with a genetic condition that affects multiple parts of the body known as CHARGE syndrome, Livi required extensive medical … Read More

Born a Fighter: After Open-Heart Surgeries, Winston Thrives

On March 16, 2017, Lauren gave birth to a baby boy named Winston, and for a few hours, everything was fine. Within 24 hours, however, Winston was brought to the NICU, where an echocardiogram of his heart confirmed it was … Read More

Born with Three Congenital Heart Defects Today Oliver Thrives

Concerned with her two-week-old son, Oliver’s feeding, Olivia Craig made an appointment with the pediatrician. She never imagined that her newborn son would be diagnosed with a congenital heart defect let alone three. During the appointment, a nurse practitioner and … Read More

Groundbreaking Spinal Muscular Atrophy Study Helps Maisy Make Slow and Steady Gains

Every four months, Maisy, 2 ½, travels with her mom and dad seven hours from Underwood, Iowa to Lurie Children’s. They make this trek because Maisy is part of a groundbreaking spinal muscular atrophy (SMA) clinical trial run by Nancy … Read More

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